
- Applied Clinical Trials-10-01-2013
- Volume 22
- Issue 10
Smart Patients, Smarter Trials
In our increasingly online world, it only makes sense that more and more people are turning to the Internet to find and share information about their health and wellness.
In our increasingly online world, it only makes sense that more and more people are turning to the Internet to find and share information about their health and wellness. A 2012 Pew survey showed that 72% of Internet users have searched online for health information in the last year, and 35% of US adults admitted to going online specifically to try and diagnose a medical condition for either themselves or someone they know (
The online space is ripe, then, for services like Smart Patients. Co-founded by Roni Zeiger, former Chief Health Strategist at Google, Smart Patients is an online community for cancer patients and caregivers to share information about treatments, clinical trials, and personal experiences. When presenting his TedMed 2013 talk (
Enter OncoSec Medical, a biotech company with a focus on treatments for advanced-stage skin cancer. OncoSec has partnered with Smart Patients to create an online community for patients with Merkel cell carcinoma (MCC), an extremely rare and aggressive form of skin cancer. Punit Dhillon, CEO of OncoSec, told Applied Clinical Trials that he hopes to incorporate the information gleaned from the partnership into designing trials.
Dhillon said that he first learned about Smart Patients from a meeting with Zeiger at TedMed a few years ago, while the two were discussing Google's work with the flu pandemic, and the nature of social tracking. There was a need, they agreed, for "frontline" information about illness and disease states, which is where Smart Patients comes in.
The nature of the platform is appealing to Dhillon because it provides a specific launch pad from which to curate the community, as opposed to general platforms like Facebook and Twitter. "We have a gap with certain diseases we're going after," Dhillon explained. With limited options and no voice, the MCC community, for example, has "hardly any visibility and hardly any new treatment." Dhillon hopes that Smart Patients will help change that.
He adds that there are "a huge number of byproducts" to tap into that arise from establishing the community. Bringing together people who are dealing with the same rare form of skin cancer allows for specific and targeted information, including demographics and locations of patients.
Because this particular avenue of collecting information provides insights from the patient community, Dhillon hopes that it will help OncoSec shape their trial design so that it best suits the needs of the patients. Long term, Dhillon hopes that the partnership will assist OncoSec in developing a treatment solution that helps patients have better quality of life, and live longer with their disease.
Articles in this issue
about 12 years ago
ACT Coverabout 12 years ago
Relationships Between Advocacy Groups and Pharmaabout 12 years ago
Does European Policy Still Have Room for Clinical Trials?about 12 years ago
Business and People October 2013about 12 years ago
EMA Unveils New Structure and Conflicts of Interestabout 12 years ago
Personalized Medicine, Data, and Meabout 12 years ago
Bridging the Disconnect in Pediatric Clinical Trial Recruitmentabout 12 years ago
The State of CRO and Sponsor Relationshipsabout 12 years ago
Sunshine Reporting Raises Concerns for Sponsors, InvestigatorsNewsletter
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