CISCRP Announces Updated Version of Patient and Family Clinical Trials Guide
The Gift of Participation, a guide for patients and family about the clinical trials has been updated to include new information.
The Center for Information & Study on Clinical Research Participation (CISCRP) has announced the updated version of The Gift of Participation is now available. 'The Gift' was written as a guide for patients and their families considering participation in clinical trials. It was also written as a resource for professionals to use when discussing the clinical research process with their patients and the public. This new edition contains updated chapters and includes new material about social media use in clinical trials; the Sunshine Act and new laws about clinical trials data disclosure and transparency.
During the past five years, more than 200,000 copies of the first edition have been purchased and distributed. All of the proceeds from the book's sales are donated to CISCRP to support its public education and outreach initiatives.
Click here for more information or to order the book.
Including Women of Childbearing Age in Clinical Research
March 26th 2024In recognition of International Women's Month, we're featuring this recent talk between Associate Editor Miranda Schmalfuhs and Marie Teil, Global Head of UCB’s Women of Childbearing Age Program. They speak about the specific challenges women with chronic illnesses face when accessing appropriate treatment and participating in clinical trials, UCB's Women of Childbearing Age Program and it’s most successful strategies, and much more.
Improving Engagement While Maintaining Data Integrity & Validity
March 19th 2024In recognition of Women's Health Month, we're featuring this recent talk between Associate Editor Miranda Schmalfuhs and uMotif's Chief Product Officer, Julia Lakeland, discuss new technologies improving patient engagement and reducing the emotional and logistical burdens of participation, ethical considerations that should be addressed when implementing those technologies, while ensuring patient privacy, and much more.
