Clincierge Releases Study on Patient Experience in Clinical Trials
Clincierge has released "Voice of the Patient," a research report examining the patient experience in clinical trials of rare diseases.
Findings in "Voice of the Patient" include:
- Sixty-two percent of patients and 59% of caregivers say travel stopped them from participating in a clinical trial, while 42% of patients and 47% of caregivers say financial issues stopped them from participating.
- Of patients who participated in a clinical trial, 68% say travel in previous clinical trials has been "difficult" and 95% say they "seriously" considered dropping out because of challenges associated with travel.
- Sixty-five percent of patients say receiving reimbursements made it "a lot" easier to remain in a clinical trial. However, one in three say it has taken a month or more to receive reimbursement while participating in a trial.
Read more about the report here.
Including Women of Childbearing Age in Clinical Research
March 26th 2024In recognition of International Women's Month, we're featuring this recent talk between Associate Editor Miranda Schmalfuhs and Marie Teil, Global Head of UCB’s Women of Childbearing Age Program. They speak about the specific challenges women with chronic illnesses face when accessing appropriate treatment and participating in clinical trials, UCB's Women of Childbearing Age Program and it’s most successful strategies, and much more.
Improving Engagement While Maintaining Data Integrity & Validity
March 19th 2024In recognition of Women's Health Month, we're featuring this recent talk between Associate Editor Miranda Schmalfuhs and uMotif's Chief Product Officer, Julia Lakeland, discuss new technologies improving patient engagement and reducing the emotional and logistical burdens of participation, ethical considerations that should be addressed when implementing those technologies, while ensuring patient privacy, and much more.
