Clincierge Releases Study on Patient Experience in Clinical Trials


Clincierge has released "Voice of the Patient," a research report examining the patient experience in clinical trials of rare diseases.

Findings in "Voice of the Patient" include:

  • Sixty-two percent of patients and 59% of caregivers say travel stopped them from participating in a clinical trial, while 42% of patients and 47% of caregivers say financial issues stopped them from participating.
  • Of patients who participated in a clinical trial, 68% say travel in previous clinical trials has been "difficult" and 95% say they "seriously" considered dropping out because of challenges associated with travel.
  • Sixty-five percent of patients say receiving reimbursements made it "a lot" easier to remain in a clinical trial. However, one in three say it has taken a month or more to receive reimbursement while participating in a trial.

Read more about the report here.

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