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Greenphirehas unveiled the addition of the Patient-Powered Registry, designed to help foundations more effectively engage and support patient communities.
The mobile and web-based registry will allow disease-specific organizations to communicate with members—delivering patient insights such as condition-specific health information, employing interactive tools such as virtual surveys, and connecting and matching members with clinical trials that they may be interested in. Foundations can create and manage registry content quickly, streamlining operations and improving analytics to enhance patient support and provide value-added data to key stakeholders such as their boards of directors.
For patients, the Patient-Powered Registry allows them to receive trusted information on their disease, enables them to join others with the same diagnosis in driving research, and provides the flexibility to share information, such as treatments they are participating in and symptoms, in real-time.
The Patient-Powered Registry allows foundations to become even more valuable partners to sponsors by providing foundations with a tool to facilitate connections between sponsors and participants in clinical trials. In addition, it allows them to identify potential participants based on their medical history, geographic location, and other criteria.
Greenphire Launches Research Registry App Allowing Foundations and Advocacy Groups to Better Engage and Support Patient Communities. (2023, March 21). Cision PR Newswire.