Unlocking Longitudinal Patient-Reported Outcomes: The Untapped Value of Specialty Pharmacy
Webinar Date/Time: Thu, Oct 8, 2026 11:00 AM EDT
Longitudinal PRO studies fail on recruitment, not design. What if the enrollment channel already exists and patients already trust it? Join us to learn why specialty pharmacies are an underutilized opportunity for patient engagement.
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Patient-reported outcomes (PROs) are increasingly central to understanding real-world treatment experiences, yet recruiting patients into longitudinal PRO studies remains operationally challenging. Specialty pharmacies represent a high-frequency, trusted point of contact with patients receiving complex therapies, offering a scalable and underutilized opportunity for patient engagement. This presentation will discuss study design considerations, early engagement outcomes, and implications for scalable, patient-centered real-world evidence generation using existing health care touchpoints.
Key Learning Objectives:
- Evaluate early feasibility and engagement outcomes from a longitudinal PRO study leveraging pharmacy-based patient outreach
- Identify design and operational considerations for integrating PRO data collection into real-world evidence generation
- Describe the role of specialty pharmacy touchpoints in facilitating recruitment for real-world PRO studies
Who Should Attend:
- Associate director, real-world evidence
- Director, real-world data
- Head of clinical research
- CMO
- Director, patient and site engagement
- VP, clinical sciences
- Director, study feasibility
Speakers:
Krystyna Amalfe, MPH
Senior Account Executive
Intelligence Solutions — Evernorth Health Services
Krystyna Amalfe, MPH, is a public health professional with over 15 years of experience across clinical research, real-world evidence, pharmaceutical lifecycle strategy, pharmacy benefit management, and payer markets. At Evernorth Health Services, she works at the intersection of data analytics, clinical strategy, and real-world evidence to design patient-centered engagement and evidence-generation programs that support clinical research and real-world studies. Amalfe has presented at leading industry forums, including the Drug Information Association and the Summit for Clinical Ops Executives. She holds a master of public health degree from the University of Southern California and a BA in biology from Rutgers University.
Sarah Bluebond, MBA
Sr. Account Manager
Specialty Pharma Account Management — Evernorth Health Services
Sarah Bluebond, MBA, is a Senior Account Manager in Pharma Account Management and Business Development with specialty pharmacy and health services experience. Since joining the organization in 2011, she has held roles across operations and client relationship management. Sarah partners with pharmaceutical manufacturers on strategic initiatives, contracting, and business operations. She holds an MBA from Marywood University and a Bachelor of Science degree from Temple University.
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