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Applied Clinical Trials

Irfan Khan, writes that though we celebrate MyStudies' teams work, the FDA’s Patient Engagement Advisory Council deserves specific credit for bringing the patient voice into the design thinking for technologies in clinical research.

Applied Clinical Trials

Barbara Lopez Kunz, Global Chief Executive at the Drug Information Association discusses how involvement of patients in healthcare is critical for success.

Applied Clinical Trials

Do patients really want to share their data? Nearly half of the rare disease patients responding to an international survey, are against their data being shared outside or even within the medical field.